Neuroendocrine cancer

Neuroendocrine cancer

We are working to develop more detailed content about NETs.

In the meantime, you can use the links on this page and the rest of the information on the site to find information and support.

Neuroendocrine tumours (NETs) are rare cancers (less than 1% of all cancers). There are a number of different types of NETs.

People with NETs cancer should have their care overseen by a multidisciplinary team (MDT). See our Canrefer website for a list of neuroendocrine MDTs in NSW.

Support when you have a NET

One of the main organisations that provides information and support for people with cancer is the Cancer Council. Their services include:

  • an Information and Support line, 13 11 20, which has specially trained staff available to offer support
  • a range of face-to-face, online and telephone support groups
  • a program called Cancer Connect where you can talk to someone who has experienced cancer
  • an online community for people with cancer and their families and friends.

The Unicorn Foundation also has resources to help you understand NETs cancer. This is available online, or you can call 1300 287 363.

You can also talk to the cancer care coordinator or social worker where you are being seen. They can tell you what services and support groups are available locally. Your GP may also be able to provide information about this.


Use our checklists to find helpful tips or questions to ask.

Where to get help

There are people you can talk to for more information or support.

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