Cancer of unknown primary

Cancer of unknown primary

We are working to develop more detailed content about cancer of unknown primary.

In the meantime, you can use the links on this page and the rest of the information on the site to find information and support.

Cancer of unknown primary is a rare cancer (about 2.5% of all cancers) which affects both men and women. It is more common in people over the age of 60. It is also known as CUP.

With this cancer it is not known where the cancer started.

People with cancer of unknown primary should have their care overseen by a multidisciplinary team (MDT). See Canrefer for a list MDTs in NSW.

Support when you have cancer of unknown primary

One of the main organisations that provides information and support for people with cancer is the Cancer Council. Their services include:

  • an Information and Support line, 13 11 20, which has specially trained staff available to offer support
  • a range of face-to-face, online and telephone support groups
  • a program called Cancer Connect where you can talk to someone who has experienced cancer
  • an online community for people with cancer and their families and friends.

You can also talk to the cancer care coordinator or social worker where you are being seen. They can tell you what services and support groups are available locally. Your GP may also be able to provide information about this.

Checklists

Use our checklists to find helpful tips or questions to ask.

Where to get help

There are people you can talk to for more information or support.

My notes: