Bile duct cancer (cholangiocarcinoma)

Bile duct cancer (cholangiocarcinoma)

We are working to develop more detailed content about bile duct cancer.

In the meantime, you can use our General cancer information and the links on this page to find information and support.

Bile duct cancer is a rare cancer (less than 1% of all cancers), which affects more men than women. It is more common in people around 50 years old.

Bile duct cancer is also known as cholangiocarcinoma, and is a type of upper gastrointestinal cancer.

People with bile duct cancer should have their care overseen by a multidisciplinary team (MDT). See Canrefer for a list of upper gastrointestinal MDTs in NSW.

Support when you have bile duct cancer

One of the main organisations that provides information and support for people with cancer is the Cancer Council. Their services include:

  • an Information and Support line, 13 11 20, which has specially trained staff available to offer support
  • a range of face-to-face, online and telephone support groups
  • a program called Cancer Connect where you can talk to someone who has experienced cancer
  • an online community for people with cancer and their families and friends.

The Pancare Foundation also has resources to help you understand bile duct cancer. This is available online, or you can call 1300 881 698.

You can also talk to the cancer care coordinator or social worker where you are being seen. They can tell you what services and support groups are available locally. Your GP may also be able to provide information about this.

Checklists

Use our checklists to find helpful tips or questions to ask.

Where to get help

There are people you can talk to for more information or support.

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